Welcome to our Ataxia Foundation Ireland (AFI) website, we are building a community to connect and support everyone affected by an ataxia.
We are the National Support Group for people affected by all types of ataxia including Friedreich's Ataxia (the most common Genetic Ataxia) and up to 200 other types of Ataxias, some still undiagnosised.
Ataxia is a group of rare genetic disorders that affect balance, corordination, speech, sight and hearing. These conditions touch people from all walks of life and manifest in various forms, including:
Ataxia Foundation Ireland focuses on the social and emotional dimensions, we aim to prevent isolation and foster a sense of community among those impacted by ataxia. Wherever you are on your journed we are here to help.
Being diagnosed with ataxia can be a confusing and overwhelming experience. Ataxia, a neurological condition that affects coordination and balance, brings with it a host of uncertainties. You may have questions about what lies ahead and how this condition will impact your life. The most important thing to remember is that you are not alone—support and resources are available to help you navigate this new chapter of your life.
If you or someone you know has received a diagnosis of Ataxia and you would like more information please contact us on 0873616616 or email info@afi.ie.
We are completely privately funded and are totally dependent on fund raising and donations to provide our support and services to members.
Find out More
Discover more about the Social Model vs the Medical Models of Disability of Friedreichs Ataxia
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AFI are involved in research and possibly conducting clinical trials in Ireland in partnership with FARA Ireland.
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