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Welcome to our Ataxia Foundation Ireland (AFI) website, we are building a community to connect and support everyone affected by an ataxia.


We are the National Support Group for people affected by all types of ataxia including Friedreich's Ataxia (the most common Genetic Ataxia) and up to 200 other types of Ataxias, some still undiagnosised.

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Ataxia is a group of rare genetic disorders that affect balance, corordination, speech, sight and hearing. These conditions touch people from all walks of life and manifest in various forms, including:

 

Ataxia Foundation Ireland focuses on the social and emotional dimensions, we aim to prevent isolation and foster a sense of community among those impacted by ataxia. Wherever you are on your journed we are here to help.

 

Newly Diagnosed.

Being diagnosed with ataxia can be a confusing and overwhelming experience. Ataxia, a neurological condition that affects coordination and balance, brings with it a host of uncertainties. You may have questions about what lies ahead and how this condition will impact your life. The most important thing to remember is that you are not alone—support and resources are available to help you navigate this new chapter of your life.

 

If you or someone you know has received a diagnosis of Ataxia and you would like more information please contact us on 0873616616 or email info@afi.ie.

 

Latest News and Updates fom Ataxia Foundation Ireland

 

Christmas Cards 2025

Christmas Cards 2025

AFI Christmas Cards are on sale now, costing €7.50 for a pack of 10 cards. Our cards are made in Ireland and all proceeds fund essential AFI services.

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Christmas Party 2025

Christmas Party 2025

Our Christmas party will take place on November 22nd in West county Hotel, Chapelozid, Dublin. Start time is 12.30 with lunch served at 1pm.

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Dublin City Marathon Fundraiser 2025

Dublin City Marathon Fundraiser 2025

On October 26th 4th Brona Lynch is taking part in the Dublin City Marathon 2025 and raising funds for Ataxia Foundation Ireland, on behalf of her sister-in-law Kiara (41) and brother-in-law Liam (47) who both have Ataxia.

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Peer Support Group

Peer Support Group

We continue with our Peer Support Group meetings on the second Monday of every month. November 10th is our next one, all are welcome to join in. Here is the link https://us06web.zoom.us/j/85633349561?pwd=BMwKO3U915gn8Eo2lYq7ZSjuZD8xaZ.1

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Coffee Morning

Coffee Morning

Informal Coffee and Chat. We know our social lunches are not for everyone so we are having an informal get together on Tuesday November 4th at 12 noon in the Chq Building, Custom House Quay, Dublin. Would love to see you there.

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Volunteer Recruitment Drive

Volunteer Recruitment Drive

Volunteers are at the heart of everything we do, we cannot continue to operate with out volunteers.

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More News and Updates >

More details about Ataxia Foundation Ireland

 

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Fundraising

We are completely privately funded and are totally dependent on fund raising and donations to provide our support and services to members.

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Models of Disability

Discover more about the Social Model vs the Medical Models of Disability of Friedreichs Ataxia

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Research

AFI are involved in research and possibly conducting clinical trials in Ireland in partnership with FARA Ireland.

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We are here for you.

 

If you need to get in contact with us, we're just a click away!

 

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